Archive for the ‘News’ Category

Summer B-B-Q - Saturday 12 September

Tuesday, September 8th, 2009

Saturday 12th September see the 2nd Annual B-B-Q.

Last years event was a great day with sunshine, entertainment & a sizzling B-B-Q.

This year promises to be no different, with things kicking off a 1pm. There will be live music, raffles, entertainment & lots of food.

All funds will go to the centre.

See you all there.

Significant research announcements during MS Week

Thursday, April 30th, 2009

This year’s MS Week is set to be one of the most memorable of awareness weeks for multiple sclerosis (MS) after a number of significant drug announcements.

Scientists specialising in MS and presenting at the annual American Academy of Neurology convention in Seattle have reported research findings that take the field of MS treatments to a “new dawn”.

Head of Research at the MS Society, Dr Lee Dunster, said: “This week’s announcements herald a step change in treatment options for people with the most prevalent form of MS at the time of diagnosis.

“News of the development of two oral therapies for MS marks a new dawn and this could be a huge step forward for people who currently have to inject their treatments.

“We are looking at treatments that could be available on the NHS by the end of next year that will make a real difference to people’s lives.”

Today (Thursday), Professor Gavin Giovannoni from Queen Mary, University of London announced trial results of the drug cladribine, which may become the first effective treatment available in tablet form for relapsing remitting MS.

The Merck Serono drug, used in leukaemia for a number of years, was shown in latest studies in more than 1,300 people to bring about a 58 per cent reduction in yearly relapse rates compared to placebo.

There was also a 30 per cent reduction in progression of disability as measured by the Expanded Disability Status Scale (EDSS) and a reduction in lesion activity (as measured by MRI) in participants taking up to 30 cladribine tablets over the two years.

Meanwhile, Novartis announced news yesterday (Wednesday) of the latest results of their oral MS therapy, FTY270 (fingolimod).

The Phase III results showed that in more than 1,200 people with relapsing remitting MS the drug brought about a 52 per cent reduction in yearly relapse rates compared to beta interferon.

The treatment has yet, however, to show potential to slow progression of disability.

MS Awareness week

Thursday, April 30th, 2009

This week is MS Awareness week.

Many National organisations are using this event to promote MS and the problems people with MS experience as well as raise awareness of MS to the general public.

On Wednesday 29 April, This Morning on ‘ITV’ had an artical on MS and interviewed two people with MS as well as a Neurologist.

Stem Cell Therapy - update

Tuesday, February 3rd, 2009

In an article in the Lancet Neurology a report was published on the results of a trial involving stem cell transplantation in people with relapsing remitting multiple sclerosis (MS).

Please see the attacked link from the MS Society website.

Application form - On-Line

Monday, January 19th, 2009

You can now print an appication form to become a member of the West Yorkshire MS Therapy Centre from this site. Just click on ‘Becoming a member’ from the main menu.

This can then be returned to the centre after your GP / Neurologist / MS Nurse has completed the form.

Collections - 2009

Thursday, January 8th, 2009

Collections are a valuable source of income for the centre. We are finding it increasingly diffiult to arrange supermarket collection dates for 2009. This is due to the ‘credit crunch’ as well as other charities approaching supermarkets to arrange dates.

The collections page has all dates for 2009 agreed so far. If you can help with any dates please let Trevor know at the centre.

Change in session time

Tuesday, October 7th, 2008

There has been a change in session times.

The 6pm Wednesday dives have been replaced by dives at 4.30pm on a Tuesday.

Summer B-B-Q - Pictures

Thursday, September 18th, 2008

The St Raphael Singers

The St Raphael Singers

Preparing the food

Preparing the food

The Summer B-B-Q was a gret success with a great turn-out of members and families.

The weather was excellant and so far, we have raised in excess of £400, with funds still coming in.

Thank you to The St Paphael Singers who entertained us as well as the help and assistance offered by the many volunteers as well as staff members.

SUMMER B-B-Q - Saturday 13th September

Thursday, September 11th, 2008

Just a reminder to everyone about the Summer B-B-Q this saturday at the centre.

We have a choir entertaining throughout the afternoon along with the raffle and many other events.

Entry is free with B-B-Q food on sale through the afternoon.

Please support the centre if you can.

DAILY MAIL ARTICLE ON MS - 02 September 2008

Wednesday, September 3rd, 2008

Tim Satchell, a Daily Mail correspondant has MS.

He did the following article on his challenge with the illness..

Daily Mail Article